Video Gallery
Except the 2-3 awareness videos, most of the videos listed here are specially kept in unlisted category on YouTube, as intend is NOT to get likes/views, rather to ensure that only relevant people (CALS/PALS) access them for their reference.
Video Gallery Index :
1. Mom's 7th Birthday on Ventilator (public)
2. Session 1 and 2 ALS Care and Support virtual meet. (unlisted)
3. Session 3: Speech Therapy by Dr Hemalatha. (unlisted)
4. Session 4: Neurological Queries by Dr Gouri Devi (unlisted)
5. Session 5: Neurophysiotherapy by Dr Kinnari More. (unlisted)
6. Session 6: Dietician by Dr Rupal Shah. (unlisted)
7. Session 7: Gastroenterology by Dr. Pradeep Misra. (unlisted)
8. Session 8: Pulmonary by Dr Kuldeep Grover. (unlisted)
9. Session 9: ALS Research Dr. Jemeen Sreedharan. (unlisted)
10 Session 10: Neurology by Dr. Swati H. Shah. (unlisted)
11. Session 11: Pulmonary by Dr Neetu Jain. (unlisted)
12. Video document: Covid Management and Response. (public)
13: Session 13: Neurology by Dr. Vineeth Jaison. (unlisted)
14: Session 14: Global Awareness day video and launch of upcoming movie "Dear Zindagi". (public)
15: Dear Zindagi - A movie on ALS Warriors
16. ALS Care & Support Group, India celebrating International Happiness Day. (public)
17. Understanding ALS series, Podcast#1 I BREATHING DIFFICULTY STAGE in ALS (Public)
18. Session from ALS research scientist - Dr. Mukesh Gautam, USA (unlisted)
ALS Care and Support virtual meetings
Disclaimer- Views and suggested expressed by speaker and participants are their own personal views. We do not endorse that advise /suggestions provided in the meeting is applicable completely to ALS disease aspects for a particular individual. So please ensure that you understand, prepare your own logic and go ahead with only those suggestions which you feel are correct for your loved ones with ALS.
Disclaimer- Views and suggested expressed by speaker and participants are their own personal views. We do not endorse that advise /suggestions provided in the meeting is applicable completely to ALS disease aspects for a particular individual. So please ensure that you understand, prepare your own logic and go ahead with only those suggestions which you feel are correct for your loved ones with ALS.
Session 1 and 2
ALS Care and Support- Beginning of virtual meet (26th Apr & 3rd May 2020). Glimpses of first two virtual meet-ups.
ALS Care and Support- Beginning of virtual meet (26th Apr & 3rd May 2020). Glimpses of first two virtual meet-ups.
Session 3
ALS Care and Support virtual meet 17th May 2020.
Focus -Speech Therapy session by Dr Hemalatha Singh.
ALS Care and Support virtual meet 17th May 2020.
Focus -Speech Therapy session by Dr Hemalatha Singh.
Session 4
ALS Care and Support virtual meet 24th May 2020.
Focus -Queries for Neurologist by Dr Gourie Devi,
chariman of Neurophysiology Gangaram Hospital for the session.
ALS Care and Support virtual meet 24th May 2020.
Focus -Queries for Neurologist by Dr Gourie Devi,
chariman of Neurophysiology Gangaram Hospital for the session.
Session 5
ALS Care and Support virtual meet 07th June 2020.
Focus -Neurophysiotherapist session by Dr. Kinnari More, Neurophysiotherapist
ALS Care and Support virtual meet 07th June 2020.
Focus -Neurophysiotherapist session by Dr. Kinnari More, Neurophysiotherapist
Session 6
ALS Care and Support virtual meet 21st June 2020.
Focus -Diet related queries. by Dr. Rupal Shah, Dietician
ALS Care and Support virtual meet 21st June 2020.
Focus -Diet related queries. by Dr. Rupal Shah, Dietician
Session 7
ALS Care and Support virtual meet 12th July 2020. Focus -Gastroenterology by Dr. Pradeep Misra, M.S. Consultant Surgeon Gastroenterologist
ALS Care and Support virtual meet 12th July 2020. Focus -Gastroenterology by Dr. Pradeep Misra, M.S. Consultant Surgeon Gastroenterologist
Session 8
ALS Care and Support India's virtual meet 09th Aug 2020- Focus Pulmonary by Dr Kuldeep Grover - Pulmonologist & Intensive care Specialist
ALS Care and Support India's virtual meet 09th Aug 2020- Focus Pulmonary by Dr Kuldeep Grover - Pulmonologist & Intensive care Specialist
Session 9
ALS Care and Support India's virtual meet 23rd Aug 2020- Focus Latest ALS Research by Dr. Jemeen Sreedharan - Neurologist and Neuroscientist (London)
ALS Care and Support India's virtual meet 23rd Aug 2020- Focus Latest ALS Research by Dr. Jemeen Sreedharan - Neurologist and Neuroscientist (London)
Session 10
ALS Care and Support India's Virtual meet 20th Sept 2020
Focus - Neuromuscular disorder by Dr. Swati H. Shah - Consultant Neurophysician & Neuromuscular disorder Specialist
ALS Care and Support India's Virtual meet 20th Sept 2020
Focus - Neuromuscular disorder by Dr. Swati H. Shah - Consultant Neurophysician & Neuromuscular disorder Specialist
Session 11
ALS Care and Support India's Virtual meet 20th Sept 2020
Focus - Pulmonologist by Dr. Neetu Jain - Consultant Pulmonary, Critical Care and Sleep Medicine.
ALS Care and Support India's Virtual meet 20th Sept 2020
Focus - Pulmonologist by Dr. Neetu Jain - Consultant Pulmonary, Critical Care and Sleep Medicine.
Video document Session 12: Prepared for support on Covid
This is not a medical advice but some learnings from personal experiences of ALS Care and Support India (who took care of there loved ones on ICU@home for months/years). If you don’t easily get access to hospital/critical care, these tips may come in handy in crisis situations. Also, you may feel better prepared if you understand the sequence of things that would happen over the course of covid treatment.
There seems to be a severe shortage of ‘ICU beds’, so it may give comfort to the reader that any of the steps are doable with your own efforts with support from a competent nurse/doctor at home, if there is crisis in front of you.
This is not a medical advice but some learnings from personal experiences of ALS Care and Support India (who took care of there loved ones on ICU@home for months/years). If you don’t easily get access to hospital/critical care, these tips may come in handy in crisis situations. Also, you may feel better prepared if you understand the sequence of things that would happen over the course of covid treatment.
There seems to be a severe shortage of ‘ICU beds’, so it may give comfort to the reader that any of the steps are doable with your own efforts with support from a competent nurse/doctor at home, if there is crisis in front of you.
covid_mgmt-2.pdf | |
File Size: | 1155 kb |
File Type: |
Session 13
ALS Care and Support India's Virtual meet 13th Jun 2021
Focus - Neurology queries and concerns
Speaker- Dr. Vineeth Jaison, Consultant - Associate Professor of Neurology, CMC Ludhiana, Punjab.
ALS Care and Support India's Virtual meet 13th Jun 2021
Focus - Neurology queries and concerns
Speaker- Dr. Vineeth Jaison, Consultant - Associate Professor of Neurology, CMC Ludhiana, Punjab.
Session 14 (public video)
21st June is Global ALS awareness Day. So crafted a small clip to create awareness. Also, launching "Dear Zindagi" (ALS Care and Support India family), upcoming movie which will introduce few of this beautiful family members and inspire others how they keep going when they see their life slipping away from their hands every day.
Please spread the word.
21st June is Global ALS awareness Day. So crafted a small clip to create awareness. Also, launching "Dear Zindagi" (ALS Care and Support India family), upcoming movie which will introduce few of this beautiful family members and inspire others how they keep going when they see their life slipping away from their hands every day.
Please spread the word.
Session 15 (public video)
'Dear Zindagi'- A movie on ALS Warriors Meet the Warriors of ALS Care and Support India. See through their life- how tough this journey is and how courageously they walk on this path TOGETHER. Please spread the word. |
Session 16 (public video)
ALS Care & Support Group, India celebrating International Happiness Day.
ALS Journey is difficult but let's pause for a moment to smile and try to make each day memorable. KEEP SMILING! 🙂
ALS Care & Support Group, India celebrating International Happiness Day.
ALS Journey is difficult but let's pause for a moment to smile and try to make each day memorable. KEEP SMILING! 🙂
Session 17: (public video)
Understanding ALS series, Podcast#1 I BREATHING DIFFICULTY STAGE in ALS
Please refer this video to understand the breathing difficulty stage of ALS patient, which is highly critical to understand and prepare the home with required devices for this transition. If you are able to understand this, you can avoid rushing to hospital in emergency and saved our loved ones from trauma of being in ICU walls.
Understanding ALS series, Podcast#1 I BREATHING DIFFICULTY STAGE in ALS
Please refer this video to understand the breathing difficulty stage of ALS patient, which is highly critical to understand and prepare the home with required devices for this transition. If you are able to understand this, you can avoid rushing to hospital in emergency and saved our loved ones from trauma of being in ICU walls.
Session 18: (unlisted video)
Session from ALS research scientist - Dr. Mukesh Gautam, USA
Our group ALS Care & Support Foundation was privileged to conduct virtual zoom session with a world renowned ALS research scientist - Dr. Mukesh Gautam, Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, USA. He is also in the research team for NU-9 (Now AKV9), which is one of the most promising therapy for #als treatment. He shared insights on research he is doing and lots of information and plan for future.
Session from ALS research scientist - Dr. Mukesh Gautam, USA
Our group ALS Care & Support Foundation was privileged to conduct virtual zoom session with a world renowned ALS research scientist - Dr. Mukesh Gautam, Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, USA. He is also in the research team for NU-9 (Now AKV9), which is one of the most promising therapy for #als treatment. He shared insights on research he is doing and lots of information and plan for future.
Videos from our own journey (Private/unlisted/public)
Site Map:
Home page Life Learnings and Procedures Tips Contact us Testimonials/Blessings Video Gallery Image Gallery Analytics
Dressing Home Vent care management (equipments, procedures and regular supplies) Feed preparation and PEG feeding
Ventilator Shout Out!!! ICU -Build safe ICUs, save lives. Open letter to Indian Government on ALS C & S group demands
Home page Life Learnings and Procedures Tips Contact us Testimonials/Blessings Video Gallery Image Gallery Analytics
Dressing Home Vent care management (equipments, procedures and regular supplies) Feed preparation and PEG feeding
Ventilator Shout Out!!! ICU -Build safe ICUs, save lives. Open letter to Indian Government on ALS C & S group demands
Please help spreading 'ALS awareness' in India.